I am currently taking a histamine blocker for my facial flushing & GI issues. The high Chromogranin A level may be as a result of my almost 20 year PPI for Portal hypertension. Moreover I received Reclast infusion in Dec 2020 & it seems as though these symptoms became more acute after infusion. I am also taking hydrolysate collagen which seems to help with GI issues. Thank you for sharing your information/medical PET scan experience. I plan to revisit the high Chromogranin A issue within the upcoming weeks. I needed a breather…going on since Jan 2021. I am seeing my immunologist again to rule out some chemical allergies. I have seen an oncologist: recommended possibly a bone marrow test. Large University Hospital I recently visited recommended (for now) limit PPI’s & retest bloodwork.
As of today (had PET 6/28/21) my hair is still ok. So sorry you have gone through so much …again, thank you for sharing and making me feel I am not alone with this unique situation.
Wishing you health & resolve. Please keep me posted with your journey.