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Seizures/how to dose CBD/medical marijuana
Epilepsy & Seizures | Last Active: Mar 22, 2023 | Replies (66)Comment receiving replies
@keeg1010
Hi,
I don't know much about marijuana products but if I were to try it for seizures I'd use Epidiolex (a purified form of CBD) since commercial available CBD is a supplement and not regulated by the FDA. Users can't be sure of the purity or strength listed nor the safety as claimed on the label. I read around 70% of supplemental CBD increases seizures whereas Epidiolex decreases seizures by nearly 40%. I did read on Connect where it didn't help. But also heard from people who were helped with commercial CBD. Epidiolex hasn't turned out to be the seizure cure-all once thought it would be. I did hear that CBD was more effective than THC but can't be sure. People I talked to were using CBD.
Medical marijuana became available in California in 1996 but I never considered using it. Not so sure that was such a wise move now considering I was having daily or near daily seizures.
I find it hard to believe that his doctor wouldn’t assist with dosing recommendations.
I don’t have any idea about proper dosing of CBD supplements but it is not the same as Epidiolex.
Below is a chart for dosing prescription CBD Epidiolex.
https://www.epidiolexhcp.com/dosing-and-calculator
Jake
Replies to "@keeg1010 Hi, I don't know much about marijuana products but if I were to try it..."
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Thanks for the information Jake. I was doing some research and Epidiolex kept coming up. I don't have any knowledge on this type of treatment and was really surprised that the neurologists office does the medical marijuana certification but that the doctor who approves the card does not discuss dosing. I was told to go to a dispensary. I left a message for my son's neurologist and her assistant got back to me and stated she (the neuro) was not familiar with dosing and could not provide recommendations (even though she's the one who said we should start CBD/med marijuana. Thanks for the links in both posts. I will definitely be looking into those. I am sorry to hear that your having so many seizures. They really are scary and the treatment meds side effects are just as scary. My son has enough medications...I don't want to keep adding more, especially since he's non-verbal and can't tell me if he's having side effects.
Kerry