@pjmax11 You are welcome. Your son is also welcome on Connect if he wishes to join in. There are patients on Connect who do have pain pumps for spine issues. I don't have any experience with that myself. From your post it sounds like this diagnosis was new information and that your son is starting to look for a spine specialist. I wish I had come to Mayo first, but I tried to get help locally and over 2 years, I saw 5 spine surgeons and none wanted to help me. My symptoms were not what they expected, and they didn't connect that to my imaging. It actually was medical literature that I found when I looked up a term in a publication that brought me to Mayo, and I found that because of literature that was co-authored by the surgeon that I hired. I knew that my case would be understood because I read about similar symptoms.

I haven't found much in literature about adult spina bifida, and I was looking through the list of Mayo neurosurgeons for interests in spina bifida for adults and one of the names I found was Meghan Murphy. I remember seeing her when I was at Mayo with my spine surgery (for cervical stenosis) 5 years ago when she was involved in my discharge from the hospital and she was working with my surgeon. She trained at the Mayo neurosurgery program and must have been in her last years there when I had my surgery. She is practicing at a Mayo Health System location in Minnesota. Here is her profile. https://www.mayoclinichealthsystem.org/providers/meghan-murphy-md

I got her profile from this list.
https://www.mayoclinic.org/diseases-conditions/spina-bifida/doctors-departments/ddc-20377867