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Has anyone tried Scrambler Therapy for neuropathy or for pain?
Neuropathy | Last Active: Aug 7 12:39pm | Replies (262)Comment receiving replies
Hi, i am new to this blog and read your enlightening post. I have been dealing with what has been diagnosed as idiopathic sensory nerve neuropathy for about 6 years, which started at the bottom of my feet and has gradually spread up my legs, my arms, back and neck. I found that the 3-4 neurologists that i went to offered nothing in the way of cure, but only tested and prescribed. I stopped seeing them. I had not heard of the two treatments you mentioned, scrambler therapy and sanexas, but i am definitely going to check them out. Thanks! I have gradually increased my gabapentin from 100 mg three times a day to 300 mg three times a day, like your husband, and it does give some relief. I use an over the counter cream, Topricin Fibro Cream, which helps some and is worth a try. I guess that his issue is not the same as mine, but close. Neuropathies seem to come in many different forms. I'll look forward to communicating with you if that's ok.
Replies to "Hi, i am new to this blog and read your enlightening post. I have been dealing..."
Hello @lincolned. That sounds very frightening. I have found the same regarding the neurologists.I had originally read about the scrambler on the Mayo website but then in a discussion I saw someone mention that they were not offering it as a solution just studying it's effects. This can be so discouraging when so many people suffer from this type of pain but very little research has gone into finding solutions. My husband takes 300mg Gaba 3 x day. I do think the doxipene helps but on top of the Gaba it adds to the groggy tired feeling. I will check out the Topricin Fibro cream. Definitely worth a try.
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Hi @lincolned, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. There really is no cure so to speak for neuropathy but there are a lot of treatments to provide relief from the symptoms. It's good that you are investigating and learning as much as you can about treatment options and what other members have shared with their experiences. There is another discussion you might find helpful -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
If you are looking for more information on neuropathy, here are 2 of my favorite sites for research and learning.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
I think most of us have wasted money on different treatments that provided little or no relief so it's good to do your research on whatever you are looking at. You might find the following discussion and sites helpful for evaluating different neuropathy treatments being advertised.
Quazar's guidance about avoiding scams and snake oil cures
-- https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/
FDA's Health Fraud Page
-- https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm
NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
-- https://nccih.nih.gov/health/decisions
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