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@klpintx

I’ve had PMR for 18 months. Started at 10 mg prednisone, got down to one and then my numbers skyrocketed for no reason (not much pain, but some). My dr put me back up to 5 mg and I’m on methodextrate (?) I have had NO side affects (maybe thin skin, but that happens with age!!). No weight gain, no sleep issues, none. I am most grateful, of course. So I wanted to encourage you that side affects are NOT a given!!

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Replies to "I’ve had PMR for 18 months. Started at 10 mg prednisone, got down to one and..."

Hi @klpintx, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It sounds like you are doing well with tapering down on prednisone. It's not uncommon to have episodes where you have to up the dosage when tapering off of prednisone. My rheumatologist was great in suggestions for tapering and even helped by prescribing prednisone tablets in 1, 2.5 and 5 mg doses so that I could easily taper off in smaller doses to make it easier.

Do you keep a daily log of your dosage and the amount of pain you have when you get up (scale of 1 to 10, etc..)?