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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
@pfists I think the Mayo clinic will answer your questions...I'm interested in the natural improvement you're making without meds; think it's a good sign you don't need'em, and Mayo will give you good advice on that. As for IV vs. specifically oral...I'll be thrilled if I can avoid the stomach-killing oral drugs and do IV! Inhaled is best as it's most targeted,
Replies to "@pfists I think the Mayo clinic will answer your questions...I'm interested in the natural improvement you're..."
Sorry...missed the "abscessus" part...saw just the MAC...you know best!
Boomer, I understand. Katherine
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Boomer, I don't mean to frighten her .. but when @pfists Shari said "I have been testing positive for mycobacteria abscesses for a year now." Sorry .. your statement " I’m interested in the natural improvement you’re making without meds; think it’s a good sign you don’t need’em, " is really off base.
I HAVE HAD: MYCOBACTERIUM ABSCESSUS SUBSPECIES M. BOLETTI ISOLATES . I FOUGHT it for THIRTY months .. it is one of the most difficult mycobacteriums to bring to "stability" .. you do NOT make "natural improvement without meds". What you DO is create UGLY ABSCESSUS in your lungs instead! Yep! Pretty ugly stuff. I've been there .. done that. I can easily speak as a voice of personal experience. Katherine