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Getting your first appointment

Visiting Mayo Clinic | Last Active: Mar 21, 2023 | Replies (110)

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@pjmax11

Hello. I just joined Mayo Connect to try to help my 35 yo son with spina bifida occulta. He has 3 boys under 5 and is in intense pain. He also has severe knee pain bc of a wreck in his teens that severed his quad tendon. A radiologist friend here (Tulsa) told him to only go to Mayo for spine surgery, so I’m trying to gather info for him. Where do I start? Is there a certain location that specializes in spine/neuro concerns? Thank you!

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Replies to "Hello. I just joined Mayo Connect to try to help my 35 yo son with spina..."

Hello @pjmax11, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I know it must be difficult for you as well as your son trying to make sure you find the best help possible when you are considering spine surgery. Here is some information you might find helpful while we wait for other members to respond.

-- @jenniferhunter shared this post in the Severe spinal stenosis discussion on the best Mayo location for spine surgery that you might find helpful - https://connect.mayoclinic.org/comment/290266/
-- Spinal Cord Injury Program: https://connect.mayoclinic.org/blog/spinal-cord-injury-program/
-- Spine Care - expertise and rankings: https://www.mayoclinic.org/departments-centers/spine-care/sections/expertise-ranking/orc-20426372

Do you have any other questions about travel or lodging that you are trying to get answered for the surgery?

@pjmax11 Hello and welcome to Connect. I wanted to share with John in welcoming you and I will do my best to answer your questions. All Mayo campuses have neurosurgeons, but the Rochester campus might be the largest group of neurosurgeons with subspecialties. I had spine surgery at Mayo Rochester with Dr. Jeremy Fogelson who is a spine deformity expert and who does a lot of scoliosis cases. My case was for cervical spinal cord compression. My experience as a spine surgery patient was excellent. I was highly impressed with everyone at Mayo. You might enjoy my patient story.
https://sharing.mayoclinic.org/2019/01/09/using-the-art-of-medicine-to-overcome-fear-of-surgery/
Here is a list of Mayo neuro-surgeons (all 3 campuses) and each profile tells what there special interests are.
https://www.mayoclinic.org/departments-centers/neurosurgery/sections/doctors/drc-20117103
May I ask what your son is looking for in treatment of the spine? Does he have a diagnosis of a structural problem that can be addressed by surgery?