← Return to ARDS Support: my story and looking to help other survivors

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@giffordtheresarev

Thank you, Colleen, for your warm welcome. I feel comforted my your invitation to come back and share how my new appointment goes next week; I don't expect to see the first one again; will certainly get the Mayo print-out to her with some personal feedback. I read my post out loud to my oldest daughter, who is very interested and understanding, and my sister, who seemed astonished by what she heard! No one in my family is ever willing to help me recall events or to share any of their own feelings...perhaps my posting will help open the door as I would really like to make my experience, as old as it is, real. The silence is deafening! More later...sincere thanks, Theresa

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Replies to "Thank you, Colleen, for your warm welcome. I feel comforted my your invitation to come back..."

Isn't interesting how different family members react. It can be hard to family members to recall the events or share their feeling. Post-intensive Care Syndrome affects them too.

@seanne shared in another post "“Various family members stayed with me around the clock in the ICU. They experienced my frightening ups and downs and the reality that I might not survive. Once home I was full of questions about what I'd been through. It didn't dawn on me that asking about my hospitalization continuously re-exposed them to their own ICU trauma.”

I wonder if @plexiclone @seanne @rosemarya @rckj or @andreab might have some tips to share about encouraging family members to share, support and fill in some of the blanks?