Hello @kaitgmiller and welcome to Mayo Clinic Connect. You have certainly been through an immense amount of health issues. Considering you were otherwise healthy and are just 28, I think I would suggest expediting your request to come to Mayo Clinic like you have already considered. The reason being is because of the coordinated care. Keeping tabs on what multiple departments are doing to support you is overwhelming and stressful on its own.

Are you in MN?