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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 23 hours ago | Replies (7049)Comment receiving replies
Hi my name is Lynda. I live in California. I was diagnosed with Fibromyalgia in 2000.for the last 9 months I have been dealing with severe back pain. Three months ago I started to have digestion problems along with numbness and horrible weakness in my upper legs. I AM currently waiting for tests that will not be done until the end of August. Nice to be here.
Replies to "Hi my name is Lynda. I live in California. I was diagnosed with Fibromyalgia in 2000.for..."
Hello Lynda! Welcome to Connect, thank you for joining us. You have come to a great place for support, guidance, and to learn of others experiences.
I am sorry you are suffering from fibro, back pain, and most recently digestive problems, and numbness and weakness in your legs. My body has had a host of problems quite similar to yours. It's frustrating to say the least and creates a storm of confusion when trying to narrow down the cause.
Have you ever heard of Central Sensitization Syndrome (CSS)? It is something that might be of interest to you to keep in your back pocket while you're exploring causes. Here is video presentation by Mayo Clinic's Dr. Sletten, on CSS. I found it fascinating. It helped me narrow down the overall root of my cause which was CSS. An umbrella to all of my diagnoses.
https://www.youtube.com/watch?v=8defN4iIbho
If you are up to it, would you mind letting me know your thoughts, and if anything from the video resonated with you?
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I’ve been working with one for about six months and am so thrilled that I found this doctor!
My word or caution is make sure it’s not an office that herds you in like cattle. The first office I went to booked 15 of us for a one o’clock appointment. When it was finally my turn it was a cookie cutter outfit. After a few minutes the guy said to me “Come with me I’m giving you an injection.” I left. I found a wonderful one that is part of Atrium Health. I called their “find a physician “ line. They LISTENED and suggest a different doctor. He spent a lot of time with me and was very thorough with me. He listened.
Do your homework.