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Myasthenia Gravis and COVID

Autoimmune Diseases | Last Active: Oct 17, 2021 | Replies (34)

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@colleenyoung

Steph, is your September appointment with Mayo Clinic?

@Erinmfs, What tips would you offer @skhollandmt as she prepares for her appointment?

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Replies to "Steph, is your September appointment with Mayo Clinic? @Erinmfs, What tips would you offer @skhollandmt as..."

Yes they are with Mayo. Because I need the macroadenoma removed I see endocrinology, neurosurgery, neuromuscular (because of the MG diagnosis), have labs, EMG's, and MRI! Very thorough evaluation for sure!

My MG was definatively diagnosed with a tensilon test with Mayo's neuro opthamology. I was seronegative and EMG negative at the time, but my eye was drooping. The tensilon injection opened my eye right up and I was diagnosed MG. I had a 4 day workup when I was first diagnosed. Go in with a positive attitude and let them test you for everything (like they did me), I had MRIs, an MS spinal tap, all kinds of tests, I even caught all my urine for 8 hours walking around the campus, and in the end, I walked out with MG after 4 days of testing.