@becsbuddy and @maryz. Mary, I'm so happy you've finally found some treatment that works for you!
I've suffered with OLP since December so can certainly empathize with the pain and difficulty eating (and talking too). Like you, after many doctors and many treatments, I've found a wonderful dermatologist who firstly treated it with Clobetasol four times a day and then elevated to six times a day. When that treatment failed, he prescribed Protopic (tacrolimus ointment 0.1%) and Voila! Success! The pain has subsided and the larger lesions on the side of my tongue are beginning to shrink. I'm so relieved. It's been a miserable time lately, with severe IBS and a recent heart attack. Wishing you much continued luck in your journey toward healing. Warmly, Laurie