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Long term Polymyalgia Rheumatica

Polymyalgia Rheumatica (PMR) | Last Active: Aug 5, 2021 | Replies (13)

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@beryl

Hello John this is @beryl after twelve years I am in remission and very slowly taking prednisone down. One day five next six mg
I still have pain in my legs but this is from lower back trouble. I had an operation last April and am hoping that in time my pain will go. Hope you are alright and not having too much trouble with pain.

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Replies to "Hello John this is @Beryl after twelve years I am in remission and very slowly taking..."

Hi @beryl, Good to hear that your PMR is going into witness protection 😁 12 years is definitely a long time. I have lower back issues also and it makes it harder to walk. I really think I have the start of Bent Spine Syndrome (BSS or Camptocormia). Just have to take each day one at a time.