@so1frustrated, It is good to hear that you have connected with an oncologist whom you like and who is going to work with you. Your interest in researching your condition, and your self advocacy are definitely to your benefit as it sounds like you can have an open and honest communication with him.
You asked how I am, and I will say that I am doing well. I had a good check-up at Mayo in May for my annual transplant evaluation. It is always a happy feeling when there are no changes to medications!

I want to point out a currently active discussion. I don't know if it pertains to any of your situation, but I want to share the link with you. Members are talking about bladder cancer, and chemo, radiation.
https://connect.mayoclinic.org/discussion/bladder-cancer-kidney-transplant/