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Bladder cancer & kidney transplant
Bladder Cancer | Last Active: Nov 8, 2021 | Replies (26)Comment receiving replies
I'd like to bring other members who have experience with bladder cancer and bladder removal (cystectomy) into this discussion like @sue225 @jimmy2248 @texascitylady @jackc @parus @quark @judith4.
@tucsonguy, are you getting intravesical therapy like Bacillus Calmette-Guerin (BCG) or a different kind of chemotherapy? Do you have any questions about the bladder removal that you'd like to be prepared for?
Replies to "I'd like to bring other members who have experience with bladder cancer and bladder removal (cystectomy)..."
It is my husband who has bladder cancer. Difficult case. 17 years (and 10 surgeries TURB) of dealing with it. Now unable to tolerate either bcg or gemcitabine (high grade, so far non-muscle wall invasive). Bladder lining paper thin. Maybe due to radiation for prostate cancer many years ago. Now facing prospect of bladder removal. Interested to hear from anyone in a similar situation. Anyone dealing with cancer specialist who has experimental study underway? We will be getting 2nd opinion shortly.
Yea! What is life like carrying a bag around for the rest of your life. I think I am ready for it but just want to hear it from someone going through it. That’s the only thing that scares me. Thanks
Bob
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I had 3 months of chemo back in 2013. Then in feb 2014 , had my cystectomy at Jefferson Hospital in Philadelphia, and IC conduit. Have not had any real problems other than kidney stones which really threw me for a loop, but luckily, so far no cancer.