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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@dbmenger

Thank you for your reply! I have my endocrinologist, oncologist and gastroenterologist (I seem to have my own clinic) looking at this anomaly - led by my PCP.
All this chromogranin business started with hot flashes I had out of the blue 20 years after a hysterectomy and two years after cessation of Premarin. I’m still flashing - and I have weird chromogranin results. I’m thinking it’s going to be part of my permanent persona.
We have a university medical center here; I just need to figure out where to go there.

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Replies to "Thank you for your reply! I have my endocrinologist, oncologist and gastroenterologist (I seem to have..."
Teresa, Volunteer Mentor | @hopeful33250 | Aug 3, 2021

@dbmenger I hope that you do get another opinion. Another opinion can at least put your mind at ease or give you an answer. Either way, you need to have some answers.

Will post again as you have questions and look for help?

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