← Return to Living with pain

Discussion

Living with pain

Chronic Pain | Last Active: Aug 11, 2021 | Replies (65)

Comment receiving replies
@mikaylar

Wow, you certainly put your all into it. I am seeing an alternative medicine lady tomorrow to see what she has to offer. My neurologist wants me to do more Ketamine and infusions but after 6 years, I'm sick of it all. Not only is the headache painful but every procedure hurts. I just had open heart surgery and the doctor was sure that after the hole in my heart was repaired, I'd get relief. Not! My brother had heart surgery at the same time and his migraines went away.

Jump to this post


Replies to "Wow, you certainly put your all into it. I am seeing an alternative medicine lady tomorrow..."

I'm very glad your open heart surgery was a success. That's great news! Yes, I agree, after 6 years, and not being any farther ahead of the game, I'd be sick of it too.

Do you mind asking your alternative medicine lady tomorrow, if she is familiar with Central Sensitization Syndrome (CSS)? Most specialists do not understand, or take the time to understand CSS. It is a chronic pain syndrome caused from an upregulation of the central nervous system. It can stem from a traumatic event, surgery, procedures, or possibly unknown (born with it). I learned that so much of my needle entries, which began hurting more and more, were continuing to push my upregulation and add to my pain. As you explain more to me, I definitely wonder.

Here is a video by Mayo Clinic's Dr. Sletten, presenting on CSS. It really provides the "why" behind the "what".
https://www.youtube.com/watch?v=8defN4iIbho
Best of luck with your appointment tomorrow. I am rooting for you!