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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@iampatient

I am a MS patient with a rare condition called simultanagnosia. I desperately need to reach out to any individuals who may have this condition so I can discuss it with someone who is aware of how it feels living in the world of visual agnosia. My world feels very small and I would love to be able to have discussions about the drawbacks we experience without sympathy,
but by sharing our on hand knowledge with each other.
Is there anyone out there that would like to share their experiences with me?
I also have 24/7 vertigo which came with my last relapse two months ago.

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Replies to "I am a MS patient with a rare condition called simultanagnosia. I desperately need to reach..."

Hello @iampatient, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I see that you have connected with @kenc and shared what helps the pain in your feet and hands. You might find the following discussion on agnosia helpful:

Rather worrying memory/processing symptoms at 23 years of age: https://connect.mayoclinic.org/discussion/rather-worrying-memoryprocessing-symptoms-at-23-years-of-age/

Here is an article you may also find helpful - The neuropsychological rehabilitation of visual agnosia and Balint’s syndrome: https://www.tandfonline.com/doi/full/10.1080/09602011.2017.1422272

Did your doctor or care team provide any suggestions or brain exercises to help?