Thanks again for the links, I am reading more and more about Sjogren's Syndrome. It can definitely affect the entire body in many different manifestations. I have not yet been seen by a neurologist, although I saw a Physiatrist for a nerve test to confirm my neuropathy diagnosis but I have not had an guidance as to what the test actually means as far as severity or prognosis. I am counting on my Rheumatologist to guide me in the direction need as things develop. Thanks again for this great forum to discuss issues we have. My husband is a great caregiver so far, but he really doesn't want to hear all the details. He assures me we will do whatever we need to get me the care I need. It's really up to YOU to do the legwork and calling and asking. Doctors seem to want to pinpoint one problem and focus on that, or send you on to a specialist, passing you off, as it were, to the next doctor. I'm not giving up.