Hello- As an LBD patient - I can say that this is a problem faced by many of us. We have found tht al big part of it is the others not knowing what to say or how to handle it. Fear is a big factor. Many folks have not - first hand - been around - rather interacted with someon with dementia.
Even in my early stages - when people find out - they treat me a little different. Probably with good intentions - but again they arent equipped for this.

Some folks arent ready to face that with a loved one and shut them out - thinking not dealing itch it firsthand will make it go away. They dont want to go through the losses and deficits with them - just don’t know how.

Sometimes counseling can help. Has this been anything that has come to mind? Sometimes helping others know what to expect and what is going on, why these things are happening.

Here are some good communication tips that many people find handy - not just for themselves nd caregivers 0- but to help others as well.

Would the family be open to some educational resources?

There are a lot of them out there.
These sites have some to look at:
EXCELLENT - https://connect.mayoclinic.org/blog/dementia-hub/

http://Www.lbda.org

https://www.alz.org/alzheimers-dementia/what-is-alzheimers
https://www.alzheimers.net/

This is a tough journey for all involved - us patients, caregivers, family and friends.
I wish I could understand how to make others understand that we aren't doing anything to hurt them intentionally.

I apologize if i am rambling. My LBD mind likes to do that a lot.

Peace
Larry H

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