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COVID vaccines and neuropathy

Neuropathy | Last Active: 1 day ago | Replies (2168)

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@jeanmmurph

I am 46 and had sudden, persistent neuropathy approximately 2 weeks after receiving Moderna. That was 3 months ago and I still have it. Some days I have patchy numbness, other days I have intense electric pain in my arms and legs.

When the numbness started in my arms and legs, my doctors were concerned that I had Guillain Barre. That has since been ruled out. My blood work shows elevated Anti-MAG Antibodies and while my large nerves are healthy (confirmed with EMG), it seems my small fiber nerves have lost the ability to feel hot, cold and pain correctly. I am currently seeing 3 Neurologists, 2 at leading teaching hospitals. The current theory is that I am having ANS issues that are impacting my small fiber peripheral nerves. They have not been able to rule out the vaccine as the cause. Moderna, VAERS, and the CDC have an adverse event case file for me.

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Replies to "I am 46 and had sudden, persistent neuropathy approximately 2 weeks after receiving Moderna. That was..."

Sorry to hear that you too had a reaction to the Moderna vaccine. I too had the same symptoms after the Moderna vaccine with burning in arms and legs. Just had a follow up with my neurologist. He is pretty certain that it is the vaccine that caused my symptoms. Did not suggest anything other than Neurontin. He just said that it will get better on its own. Just wondering if your neurologist suggest any other treatment to speed the healing?

Hello @jeanmmurph and welcome to Mayo Clinic Connect. I am sorry to hear that you are going through this.

Fortunately, @sam90 noticed similarities in their experience and has reached out to connect with you and ask some questions of you as well.

How are you dealing with your symptoms?