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Living with pain

Chronic Pain | Last Active: Aug 11, 2021 | Replies (65)

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@mikaylar

I have had a daily persistent headache for 2 years. Have been treating at Jefferson Headache Center for 6. I have had spinal blood patches with glue, 6 neck nerve blocks, 78 Botox, infusions, 5 day hospital stay, nose blocks, etc. Nothing works. Can anyone comment?
Mikayla

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Replies to "I have had a daily persistent headache for 2 years. Have been treating at Jefferson Headache..."

Hi Mikayla, welcome to Connect. Thank you for coming to seek advice, and learn from others. First, I'm sorry to hear of your daily persistent headaches. Two years is a long time! You have quite the resume of trying many strategies.

Speaking from experience of having migraines for years, and occipital neuralgia, I've also had the not so nice pleasure of spinals, epidurals, neck and occipital nerve blocks, radio frequency ablations in both neck and head, plus monthly Botox and migraine self injection meds. I tried 5 months of lidocaine infusions, and even drank a migraine abortive powder mix. All to no avail.

Like you, I wanted relief, and to move on with my life. Unfortunately it did not happen that way. Drs. do the best they can, while staying in their specialty lane, and offer us one treatment, test, medication after the other. In some cases, all that flares our system, stress builds because we are not finding relief, and the cycle go on.

It took me a long while to come to grips with a different, more holistic approach where my struggles were more in my hands, verses Drs. hands. I realized "band aids" were not helping my chronic situation, and once in chronic mode, it becomes more than one miracle pill or injection...it becomes more about a comprehensive plan of teaching one how to calm, and quiet the raging fire of symptoms and pain.

I like you, wanted help, and the only help I eventually found was the Mayo Clinic Pain Rehabilitation Program. It's a pretty big step, and only you know if it's worth it to you, but it taught me how to quiet my fire by cutting of the fuel lines through PT, OT, drug reduction, cognitive behavioral therapy, etc....

Here's a link to the Pain Rehab Center in case you are interested:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Do you mind letting me know your thoughts? Is this anything you might consider?