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New Daily Persistent Headache

Chronic Pain | Last Active: Mar 27, 2023 | Replies (140)

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@mikaylar

I have had a daily persistent headache for 2 years. Been treating at Jefferson Headache Center in Philadelphia for 6 years. I have had every medicine available, 6 neck nerve blocks, 4 spinal blood patches with glue, 78 Botox, along with infusions and a 5 day hospital stay running migraine meds. Nothing works. Can anyone comment. I have been on the couch for 2 years.
Mikayla

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Replies to "I have had a daily persistent headache for 2 years. Been treating at Jefferson Headache Center..."

Remember, under no circumstances should you receive any pain meds. All pain is curable by CBT (cognitive behavioral therapy). I have been told this by several neurologists. Please sign up for an Intensive Outpatient Program to learn to live with your pain. They last 8 hours a day and can last for a month but only weekdays. Please research your local hospitals that offer mental health programs.

@mikaylar Has anyone looked at what you are eating and drinking? I had debilitating headaches for 2 years after brain surgery and figured out on my own they were being caused by the aspartame I was getting in a packet of Equal in the morning and a diet pop in the afternoon. I quit using aspartame in my coffee and quit drinking diet pop. My debilitating headaches ended the next day. Seriously. From keeping a headache journal, I identified my other headache triggers, such as hormones in nonorganic chicken, nitrites in bacon, ice cream, red wine, and the weather. I couldn't control the weather, but I could avoid these other things. I really hope you can find relief...I too spent days on the couch doing nothing, i.e. anything I could to avoid getting headaches. Take care! Nancy

@mikaylar
I also have had daily headaches for 22 years. They never could figure them out. It’s always at least a level 2 and avg a 4 but can get to a 9. Drugs never helped me. Only real thing that helps when they get bad is ice packs. The gel ones you keep in the freezer. I have various size ones. I get driller points as I call them under the eye brows, forehead and back of head and neck. I lay sorta upright and put one back of my lower head and neck and one over my eyes. They usual will bring them down though sometimes I suffer them at a 5-6 the whole day. I just had one of the worst ones a few nights ago which woke me up at 4 am. Had to go get ice packs.