Thank you for your kindness!

It’s been one year this month that I fell and yes my outside tremors get worse when I’m stressed as well and I’m in pain every day, they haven’t really addressed my pain on left side except ruled out that it’s not sciatica from an MRI I got in North Carolina but I’ve had lots of physical therapy and the therapist says what I explain it sounds like nerve pain, my bands on the left side draw up and often can’t stretch out my leg without working on it and every day severe stabbing pain down it, the therapist in North Carolina and in Illinois believe I’m hyper mobile but ruled out EDS and said I’m another hyper mobile and my genetic doctor was going to figure it out and she passed away bless her but she tested EDS by DNA and one in all the testing I have one gene that is bad in one pair but if both were bad I’d be having the same symptoms I’m having but sense the one is good it cancels out the bad one, then there are three more genes that are bad and and I need more testing to figure out that but the genetic doctor that replace my doctor was out of state and we who have Medicaid had to wait and also have to have referral so life with doctors has been too much figuring out all this stuff because we had to rule out pre cancer colonoscopy and I have precancerous spots on my skin as well, we ruled out Parkinson as well, but I don’t know if you know much about Hypermobility but I’ve walked sat and stood wrong all my life and it’s harmed my body so that not reversible and right now I try my best to not convert back to the old way I walked sat and stood because when I do it causes severe pain, I also have knee problems and here in Illinois they won’t do anything but my doctor in North Carolina was going to try to help me (I will never move back because I have to have a care giver and he won’t move so I have to accept that but some days it breaks my heart I can’t go back to North Carolina and my mountains) also my hands are hardening and I left NC before I found out and haven’t had time to go fine out what’s happening to my hands but there is a lesion on my forearm bone and the doctor was so rude because of Medicaid when he checked my knees said my insurance won’t pay for MRIs and then they called me with X-ray results of my arm and said I need an MRI lol I said but that doctor told me my insurance doesn’t do MRIs and they wanted the films from the one I did in North Carolina and I said oh how odd he’s so interested about MRIs now anyhow the lesion just has to be recheked every so often to make sure doesn’t grow
This has all been in 10 months living here in Illinois so we’ve been busy also my ex husband is my caregiver and he has small tear in rotary cuff and he keeps pushing surgery off and also we ruled out clogged veins in his legs and he has to have his heart checked every so often too so life’s been a circus and I’m laying low all I can for several months also in 10 months I fought to get SSI and social security disability and thankfully it went through so some positive has happened as well
Just being thankful in this mess some good happens
Oh also yes Illinois is a state that marijuana is legal but there’s concerns how I will react because I’m on some meds that might interact and I have severe reactions to meds and also vocal fold or also know as Vocal cord dysfunction (when I got it it took 1year and 9momths to find a doctor in St. Louis MO to diagnose it and it means my vocal cords are about 70-80% closed and if an irritant in the air or also something I eat it closes off even more if I have a reaction , often I can’t get enough air through my vocal cords and my states go down, so I have to be care of all sorts of irritants but moving back to Illinois and the air quality is bad from farming and the grasses I am worse sense moved back here)
Life is a journey and we all have to run the race which ever it may be !!!
Thanks again for your insights