Hi Cathy @mcd123, Welcome to Connect. Sorry to hear your neuropathy symptoms have gotten worse and the pain management doctor and your neurologist are not on the same page. You might be interested in the following discussions where members have shared what helps them.

-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Eliminating Foods for Neuropathy pain: https://connect.mayoclinic.org/discussion/neuropathy-pain-1/

@artscaping, @avmcbellar and other members may have some suggestions for you. Also the Foundation for Peripheral Neuropathy has some complementary and integrative therapies you might find helpful here: https://www.foundationforpn.org/living-well/integrative-therapies/

Have you tried any alternative treatments to see if they might help with your neuropathy pain?

Hi @mcd123 sorry to hear of the unbearable pain you are experiencing. Your doctor should be understanding and not be upset you tried to seek help with a neurologist . If anything else it is a signal for him to further help you with your pain. I was left with neuropathy in error as a result of my last surgical repair of my ruptured AVM(arteriovenous malformation). The surgeons initially at the time of my AVM had told my family I was not expected to live. It is going on 5 years now that I have been learning to help myself. As I had feared, I knew more than the team of physicians did at that time of my AVM. They were not helpful with my recovery because they did not have answers for me. I learned through trial and error. I do not take any oral medications because I do not want to be guessing the causes for any medical issues. What I have found helpful in decreasing my neuropathy pain was eating a well balanced low carbohydrate diet and exercising. I have been a pescatarian for over 40 years. I enjoy making my foods from scratch. That way I can control the ingredients. I mainly eat and have eaten all my life a Mediterranean diet. Supplements other members found to be helpful I did not. The majority of my nutrients come from the foods I eat. I believe that is best for me. As a teenager I had researched my diet( yes, I hung out at the local library back then, lol) for any adjustments. Throughout my life I never had a deficiency or became anemic. Many people are not aware that there are many causes for anemia and not just an iron deficiency.
I can say that I certainly feel better today through the discovery of my findings. Years ago I had a bitter taste in my mouth after taking a multiple vitamin which I had taken occasionally before my AVM without any problems. It became worse after the 4th day so I stopped. I even called the manufacturer after no replies from the Mayo members for suggestions. The manufacturer had no clue either but I eventually figured it out. Now I can tolerate the same multiple vitamin without the bitter taste. I don’t have experiences with medications but if you have other questions in regards to neuropathy or AVMs I will be happy to answer through my experiences. I wish you well in finding answers to help you with your pain.