Extreme pain in legs

Posted by tootie70 @tootie70, Jul 28, 2021

I have extreme pain in my legs that is now continuous. It keeps me awake at night It has significantly impaired my life. I've been to a few doctors over the years, although I usually won't go unless I feel like I'm doing. I've explained the pain to them. I've gotten everything from getting older to planter fascia etc. Ok, that's fine so I did everything they told me to do and still no relief. It's deep, I told one Dr that it felt like my bones we're breaking so he ordered an xray although I told him I did not intend it. It cost me almost $400 after insurance only to be told it want broke. I KNOW THAT! . It still doesn't explain why my bones hurry so bad it makes me cry. I have a high pain tolerance but this is more than I can take. I take three extra strength Tylenol and two Aleve at once every for hours, I use biofreeze and pain patches. I can not keep going like this so any advise would be welcome. It never stops. I've had it for years and now it's just too much for me.

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@tootie70

There are no triggers because it never goes away the pain is just constantly there from the moment I open my eyes till I close them again at night I can't stand for very long by the time I get home from work I'm in tears. I have spent hundreds and hundreds of dollars on different shoes and insoles thinking that was it but it is not. I don't know what this pain is but it is bone deep and it hurts so bad

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Like @contentandwell mentioned below, medication can cause the leg pain, even some very surprising ones. Some years ago, my Mom and I, both struggling with asthma, were prescribed the same inhaler (now off the market) and began to suffer severe leg pains, to the point where I could only walk a few feet at a time. When I mentioned the pain to my chiropractor he asked "What changed?" I thought of that, looked up the side effects, and that was it - we both stopped and the pain subsided. The very same thing happened to my husband with a blood pressure med, and my Dad with niacin (he couldn't take statins.) Sometimes it can be an interaction between two meds, or between a med and a supplement you are taking.
So maybe you can go to your pharmacist or physician with a complete list of everything you take, prescription, supplement and over the counter and get help doing some research on both side effects and interactions.
I hope you can find some relief.
Sue

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@contentandwell

Hi, @tootie70 Welcome to Connect!

Are you taking any medications? I have discovered that three medications I take can cause leg pain. My legs hurt 24/7, and are at their worst in the morning. They were really incredibly horrible at one point and I mentioned it to a friend who for some reason always seems to know a lot of medical information. She immediately asked me if I was on a statin. I was, so I spoke to my doctor and he reduced the dose from 20mg a day to 10mg a day. They still hurt but are manageable now.

They were hurting before I was on the statin so I think a different medication is causing that and now a newer medication has made the pain somewhat worse but I can live with it once I get beyond the morning. I would check side effects of any medications you are taking. You may be surprised to discover that some of them could be causing your pain. Often it is a "rare" side effect but I tend to get those rare side effects. It is definitely not a case of knowing that is a side effect and then thinking I have it because as with the statin, I don't generally check that thoroughly into side effects because I don't want to be influenced by them.
JK

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I have had this problem for 10 years, but it was worse in the beginning. Does that encourage you? Now, I take two 325-5 hydrocodones a day and rarely am I in severe pain. My neuropathy is from a spine problem they think, and even though I am better (BE ENCOURAGED!) my pcp is sending me to a neuropathic surgeon this week. I don't think I want surgery but will see what he says.

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@tootie70

There are no triggers because it never goes away the pain is just constantly there from the moment I open my eyes till I close them again at night I can't stand for very long by the time I get home from work I'm in tears. I have spent hundreds and hundreds of dollars on different shoes and insoles thinking that was it but it is not. I don't know what this pain is but it is bone deep and it hurts so bad

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The only wisdom I can share from my years of experience is you will not find a dr that cares about your pain so you have to go from there, wherever that personally takes you. The pain will not be managed or helped to lessen by the medical community

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I periodically have severe leg pain if I stand or sit a long time with my knees bent. I have MCTD, and I think it is the fibromyalgia piece that is causing it. Before bed, and sometimes during the day, I do leg edema massage (you tube; basically gentle massage from toes to torso, until you relieve soreness from fluids trapped in muscles/tendons. I stretch hamstrings, do abductor stretch and, with legs elevated a bit on a pillow, pumping exercises (heel to toe) and foot rotation. I also do cat/cow/child/cobra yoga and piriformis/sciatica stretches (like Dr Jo online). My legs then are more relaxed; I use CBD ointment on the main sore spots or lidocaine patches. Try microwaveable pad either hot or from the freezer, too. Magnesium helps- epsom salt bath may be just the thing. Wear compression socks if you are going to stand or sit alot and do not bend knees much when sitting. My legs cramp at night, so I have been to Pain Management for the Percoset that helps me stay asleep at night.

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@mollyb1968

I also have severe pain in my legs and feet. I can not sleep at night for them hurting. I am told that mine is caused from neuropathy. I take Gabapentin for it but it does not relieve the pain. The only thing I have found to help is hot water and that only helps as long as I am in the hot water. I can feel your pain. My legs and fee swell so much that I am now on 80 mg of Lasix morning and evening and that does not prevent the swelling. I hope you find relief as I know what you are dealing with. Prayers.

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Gabapentin didn't really help me; I don't think my problem was nerve pain. I commented below with things that seem to work for me. Epsom salt in the hot water may really help as it is magnesium. A good brand of supplement can also be helpful.

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If you can get a medical marijuana card, I have found the indica (night) tinctures work. I take 1/2 dropper of the THC (800 mg bottle) and 1/2 dropper of CBD (600mg bottle). Try less, but if you take it daily for awhile your pain may lessen. I have 20mg/20mg THC/CBD edibles that I take an hour or so later if it is not kicking in (1/2 gummy). A hot drink or a little food like crackers can help it activate a little faster.

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@tootie70

There are no triggers because it never goes away the pain is just constantly there from the moment I open my eyes till I close them again at night I can't stand for very long by the time I get home from work I'm in tears. I have spent hundreds and hundreds of dollars on different shoes and insoles thinking that was it but it is not. I don't know what this pain is but it is bone deep and it hurts so bad

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It makes me sad to think of you coming home from work in tears, that was me also, and I am very sorry you are going through this. On a positive note...I'm glad you came to Connect. I see some very supportive responses.

I always think of pain, as being a ladder with many steps to climb in order to get to a root cause. Typically, we start at the bottom of the ladder, changing shoes and insoles for example, while trying to self resolve. I give you credit for trying, and understand how frustrating it becomes when that doesn't work.

Doctors also start low on the ladder by ordering tests, prescribing physical therapy, medications, etc... It boils down to attempting to rule out acute verses chronic. You mentioned you've seen a few doctors over the years. I'm curious what specialists you've seen? Have you seen a neurologist? Have you worked with pain management? Do you feel confident that all possibilities for diagnoses have been exhausted?

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