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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Hi, I'm new to this forum. I was first diagnosed with MAC in 2001 and was..."
@robynmar Robyn,
you can also ask about the regimen you and I have discussed before at your next
appt.
@robynmar, Robyn Welcome to our Connec Forum .. so glad you found us! I can only tell you that I did inhaled Amikacin for thirty months for my MAC .. at age about 70 .. did my "Due Diligence" .. got the proper testing and was able to stabilize the mycobacterium. I have now been stabilized since 2014 .. I answered you with a Member's recommendation for a doctor at Stanford .. hope you find that helpful! I would ABSOLUTELY get myself there for a second opinion!! I would recommend you read the past pages of our Forum to educate yourself to our shared MAC disease .. YOU must be your OWN best advocate .. and you cannot do it until/unless you have educated yourself to your options! Read .. then come back to us with any questions you might have .. we are here for you! Hugs to you! Katherine
@robynmar Hi
Robyn. I know that inhaled cipro has been in clinical trials and looks very
promising. It is supposed to be released in the next six-12 months. Not sure,
but you may have to go to somewhere like Stampford to get that trial. - Terri
M.