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Living with pain

Chronic Pain | Last Active: Aug 11, 2021 | Replies (65)

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@amandajro

@bear338 dealing with pain is so frustrating and so is feeling like you aren't being heard. Do you feel you are sharing your experiences with your doctors and they aren't taking that into consideration?

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Replies to "@bear338 dealing with pain is so frustrating and so is feeling like you aren't being heard...."

I’ve only had one dr who listened and she left the field because of what it became. Non-patient focused.

Definitely I have had a pump for over twenty years in all that time I have not gone up on the dose until it went haywire in February right after a refill just days after that is when it all went bad it has been years since I have had them increase it at all and then it would be a 2 percent and more often than not the next time I was in I would have it turned back they have my records I was going to the same place since 2007 so they know it never got all the pain but it was livable not like it has been but all they say is we have to titration up but when I got the first pump it was at a higher dose than I need and it took several trips to get it where I needed so I know bull when I hear it so I stuck in pain with something that did take care of it but now it’s like have water just out of reach when you are dying of thirst it’s all about money that they didn’t make last year so they are now doing whatever they can to make up for it. The refill I got in February must have had the wrong type of medicine that is why it clogged up the pump adapter just days after it was filled and it was the doctor who went to this pharmacy because of the price and this one doesn’t take any insurance at all but I have never had this problem in all the time I had the pump but the last 66 days have been the worst pain I’ve ever had to deal with the scar tissue in my spine must’ve gotten worse well I knew it had because I went from walking to being in a power wheelchair but I always knew that was going to happen to me but not this just be carful with your doctors .

Yes I have tried to tell them but they don’t have any interest in fixing it just keep having me come back as often as possible for no reason because of what in the pump won’t do anything for the pain just rack up more bills that all