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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "@milagro103, do you have a first name .. more personal. I googled "mycobacterium ventiflavum" .. what..."
@milagro103 Eva...very glad you got to Mayo...they're very good and throrough
Thanks everyone, My name is Eva btw!,, We are at the Mayo Clinic right now I am so impressed with this group of providers. Katherine, it is the correct spelling and I have researched. That is why I was asking. The problem is they DO NOT know what the bacteria is and cannot characterize the type of ILD based on biopsies and a surgery where they took a pieces of each lobe of the worst lung and studied it layer by layer. I feel hopeful with this new doc at least she listened. I will let you all know what the results are.