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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Jul 3 1:56am | Replies (6026)

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@artscaping

Good evening once again. I am sorry I was unable to give you what you want. I think it is time to ask @johnbishop to share the links to the sites with the latest information including national organizations and his favorite Google Search.

As you are probably aware, there is currently no cure for neuropathy. And sometimes there is no cause to be identified. ....And there are reportedly more than 200 different types of neuropathy. We try to mitigate the pain, the numbness, the tingling, and any other symptom that rears its ugly head.

I have had diagnosed neuropathy since 2013 when surgery and fusions in the cervical area were attempted to try to relieve distressing and debilitating pain in my arms, wrists, and hands. I now have two sessions of MFR. myofascial release therapy, every week to keep me walking without assists. Medical cannabis is my only choice for pain control.

I think that John will also warn you to avoid falling for the scam artists that prey on our desire to find a solution.

How long is "recent"?

May you have comfort and contentment.
Chris

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Replies to "Good evening once again. I am sorry I was unable to give you what you want...."

John, Volunteer Mentor | @johnbishop | Jul 31, 2021

Hi @bcool123, Neuropathy definitely is a bummer with no cure as @artscaping can confirm. I think the best we can hope for until a cure comes along is to find something that provides relief from the symptoms of neuropathy. I have a couple of websites that I try to keep an eye on for research information. The first one Neuropathy Commons is really good for learning more about neuropathy to give you a better understanding of what you are facing. The second one is The Foundation for Peripheral Neuropathy which I like because they try to stay on top of newest research and have a good section on complementary and integrative therapies for neuropathy. The other one I use to see if there are any new information on specific treatments is Google Scholar (https://scholar.google.com/) because you can easily sort the results by the year and it

-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/research/

Example: Google Scholar search using "latest developments in the field +neuropathy" --- https://scholar.google.com/scholar?as_ylo=2021&q=latest+developments+in+the+field+%2Bneuropathy&hl=en&as_sdt=0,24

There is also a good older discussion here on Connect on How to Avoid Quacks and Snake Oil Treatments: https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/. Then there are a couple of sites I use if I happen to be looking at something that I think may be too good to be true 🙂

FDA's Health Fraud Page
-- https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm

NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
-- https://nccih.nih.gov/health/decisions

@bcool123 You mentioned in an earlier post that your feet and toes get cold. My feet and especially the toes get cold in the winter living here in Minnesota. I found some neoprene toe sleeves that work really well to keep the heat in the front part of the foot, but I only use them in the winter time -- https://www.amazon.com/gp/product/B076B3VTRM/