← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

Comment receiving replies

Hello and may i please mention that my son was not in any late stages of cancer. We were presented with a very grimm bedside mannerism by the primary oncologist and lead to the trial. The marketing and the verbal mentions of " We'll see you in seven years and you'll be ....." - " remarks on social media "cartcells are less toxic, harmful to organs than conventional chemo, etc" THIS IS ABSOLUTELY MISLEADING" The context of adverse reactions are not linked to the proper adversities (as in the headache and hydrocephalus) and therefore it is untrue." The idea of "You may change your mind right up until the needle is above your head" is ludicrous, more on that later. Also, " Hey buddy you may hop from trial to trial if you dont like it". This is huge!!! ONE DOES NOT REALIZE THE CARTCELLS HAVE ALREADY INSULTED the body to the point of no return. This means ineligible for any others and frankly with these lingering monsters who would be eligible, as the results would be inconclusive. These engineered t cells change our entire immune response permanently, in fact, they remain indefinitley -for the good of nothing IN SOLID TUMORS. I will present my story piece by piece if i am able to. I speak the truth and can back it up anytime. Thank you for this warm welcome. I am making the most effort to not personally criticize . Thank you again. Let me add this as I am always intending to do so. Leukemia is doing very well with this cartcell immunotherapy but one should start from scratch and not piggy back off another when using the treatment for an entirely different system. Also we are not speaking of any experiences from the Mayo Clinic.

Jump to this post

Replies to "Hello and may i please mention that my son was not in any late stages of..."

I must add that my son is still alive. surpassed that 9 months by 16 months. I am not bragging, please know this is to help others that may be headed to the hell we were.