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@tsc

Hi leilalou, PMR and its big sister (I call it) Giant Cell Arteritis are self limiting diseases that are supposed to eventually go away. The length of time before remission varies a lot. Prednisone, at the proper dosage, is supposed to dramatically reduce the symptoms. I was not diagnosed for a year, so not on Prednisone, but with the PMR especially I always felt much better at night, somewhat human, but then, every next morning the horrible pain and stiffness was back. I have GCA now, started on 40 mg of Prednisone the third week of May, tapered down now to 15 mg. for the last two days. I'm always apprehensive when tapering, based on what I've read here, I know the pain can come back with a vengeance. So far, I've noticed an odd twinge once in a while, but nothing like the stabbing pains I was getting in my head or the incredible neck pain and stiffness before I started the prednisone.. I remember volunteer mentor @johnbishop posted a schedule of how he tapered, based on the scale of pain he experienced. It's probably in a tapering discussion. Wishing you the best, tsc

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Replies to "Hi leilalou, PMR and its big sister (I call it) Giant Cell Arteritis are self limiting..."

Hi Tsc. So sorry that you have GCA . Thank goodness for Prednisone. I hear that pain is terrible. It is a medical emergency when that occurs I hear. You are doing great with the tapering. I pray that this PMR/GCA runs it’s course and you are back to yourself quickly. Thank you for reaching out. Best wishes!