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@wiseowlinga

My 76 year old husband and I have been married for 3 years, a second marriage for us both. His sister, in 2002 and in her mid 50's, died from GBM. Their brother in his early 60's died from GBM in 2012. I found research done by Baylor University which indicates this is not as uncommon as researchers and doctors thought. One study indicated that it always passes to a younger relative. When their brother was diagnosed he was told that the odds of this happening are astronomically high. They are not!! People need to know this. The "excitement aspect" in my opinion needs to be reduced and stick with the facts. They had horrible deaths and that needs to be acknowledged. Hopefully, my husband the eldest, will never have to deal with this. It's been bad enough that I figured out he has High Functioning Autism and he was diagnosed at age 75. The medications he now takes means he has not had an autistic meltdown in over two months. (A doctor rarely knows the exact dosage and I believe his psychiatrist was right to be conservative.) His family is riddled with HFA, ADHD, ODD and mostly undiagnosed. I wonder if there is a connection between these diagnoses and GBM. Please keep the expressed excitement to a minimum out of respect for those who have succumbed to this horrible condition, and for those living with the memories. GBM is still an always fatal illness. (Name Withheld to protect my husband's and his family's privacy)

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Replies to "My 76 year old husband and I have been married for 3 years, a second marriage..."

Hi WiseOwl, you offer wise counsel about keeping expressed excitement to a minimum out of respect for people who live with GBM and those who have since lost their life to this horrible disease. When making a discovery that has the potential to improve or even save lives, it can be hard to contain the excitement. I appreciate that feedback and will share it with the researchers with whom I work.

You and/or your husband may be interested in joining the group dedicated to adult autism here:
- Autism (ASD) https://connect.mayoclinic.org/group/autism/