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@amandaa

Hi @billchitwood, I am sorry that Bill is dealing with so many issues. I thought I would share some information that may be helpful for you.

Low Diastolic Blood Pressure and Chronic Kidney Disease Are Associated With Increased Mortality: https://jamanetwork.com/journals/jama/article-abstract/1741818

Too-low diastolic blood pressure can be deadly for CKD patients: https://www.sciencedaily.com/releases/2013/08/130819185346.htm

Chronic kidney disease: https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

Have you asked his physician about his stomach being distended?

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Replies to "Hi @billchitwood, I am sorry that Bill is dealing with so many issues. I thought I..."

His pulse (and blood pressure) were always in a good range with his med. A few months ago BP and pulse started dropping with pulse into the 60's. Then a few weeks ago his pulse has dropped into the 50's. Not sure if it is related to his CKD or not. GRF at 47 a month ago (he paid for his own kidney blood test). Still resisting doctor. Today he is getting his flu shot and possibly Covid-19 Pfizer booster shot at local CVS.

Sept 14 he had a doctor's appointment at Mayo. When they checked him in his BP was extremely low as was his heart rate so whisked off to Mayo ER. Hospitalized for 4 days and then to SNF for two weeks of therapy and to adjust his medications. They immediately took him off his high BP med and changed him to one to increase his BP (I think Midodrine) - so far it has only brought it up slightly - at least out of the 40s/30s. Yesterday they decided they needed more time so extending his stay to 10 days (he was hoping to get home on Friday). Needless to say, he isn't a happy camper and trying to talk the doctor into letting him go home to die (at this point he is the only one talking about him dying). He is only eating fruit cups. His physical therapy is going well, although they mentioned him being weaker in lower body.
Going day by day at this point.