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Tarlov Cyst on the spine: Any advice?

Spine Health | Last Active: Oct 21 8:17am | Replies (173)
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@mfratt

I share your experience with these cysts as I have them also in my sacrum and thoracic spin. It’s my understanding that a neurosurgeon can remove them but I haven’t found one as of yet. I plan to see an orthopedic surgeon for my spinal and sacrum issues who has 30 years experience in what my problems are. Hoping he can direct me to someone that can help me. I’m 74 and have a lot of pain when I lay done. A neurosurgeon in the past wrote me off and said that I most likely had them all my life. Not so. It’s frustrating when they write you off. I will keep looking And hope that I find a surgeon who will correct this. If I I have any good news I will post a comment.

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Replies to "I share your experience with these cysts as I have them also in my sacrum and..."
bluej | @bluej | Aug 5, 2021

Hello , How are you? have you done an EMG? I had a neurologist order this back on July 21st and just now found out no one does this test. 3 facilities were checked. I am so disappointed. How can a Doctor not know this anyway? What if someone needs to have this done? Very upsetting news for me

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qball2019 | @qball2019 | Oct 24, 2021

There are really only 3 neurosurgeons in the U.S. that specialize in Tarlov cysts so I would strongly suggest at least getting a consultation. Dr. Feigenbaum in Dallas, TX is the world's leading surgeon for Tarlov cysts and it is said that he had the best outcomes. I have read about people that have had the surgery done by other surgeons and their outcomes were not good to say the least. You will find that most surgeons and doctors will write you off saying these cysts don't cause issues. Most of us have the same issues. Don't believe them and don't get discouraged. As soon as you get the feeling the doctor doesn't believe the cysts cause issues don't waste any more time on them. Move on. When you see a new doctor ask them right out if they are willing to learn about the Tarlov cysts and work with you. I look at it like I'm interviewing them. After all, you are the one who is paying them to treat you. Best of luck to you!

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