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Chronic Digestive Disorders

Digestive Health | Last Active: Nov 9, 2023 | Replies (129)

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@rozy288

Wow keep me posted on results and treatment @keetafox !! I can’t be there for weeks . Days ok like 3 nights . That’s it .
I can’t afford every test they do either even w/ insurance.
I just had a second endoscopy & 3 rd colonoscopy Jun 2020 .
I’m sure that’s first thing they do again .
I will ask for those other two tests you told me about .
I’ve done about all the gastric emptying and C scan and ultrasounds , upper GI , stool sample , SIBO and Hydrogen breath tests . I still belch over 3000 x deep wet belches no acid fault / nightly and constant churning loud gut and intestines all hours day and night . It’s relentless and 7.5 years going . It’s ruined my life .
I’ve done ✅ a laundry list of things to try to help it .
It’s depressing.
I pray 🙏 this Dr will figure me out .
Best wishes !!

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Replies to "Wow keep me posted on results and treatment @keetafox !! I can’t be there for weeks..."

Hi Rosemary Just got back from Mayo after 3 days. For me the messge was stay the course with SIBO treatment after twisted colon surgery (which removed by cecal valve). This might be a chronic situation for me. I also have Sjogrens but dont treat it with immunosuppresants as I dont like them ( personal choice). I will say a prayer for you to get answers after 7 years. I have only dealt with this for 2 years now. Sounds like you have done so much to try and figure this out. Hang in there. I dont think they do the Trio Breath Test at Mayo. I asked about it as well. That would probably be through a functional practictioner but Mayo should definitely be able to do an endoscope that goes into the intestines and takes a biopsy/culture. Have you had one of those done yet? I am wishing you all the best. Remember to be your own advocate. If you think there are other doctors you need to see there besides GI for various symptoms do not hesitate to ask. This is your shot to figure it all out so be brave, be strong and politely demanding. They are there to help you!!! Keep us posted.