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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hi Jill: I remember that tiredness. I would get up in morning, have breakfast and then go back to sleep! So unhealthy. I drank a little coffee, and just kept walking my dog, so at least I was doing something. I remember having to eat more bread and pasta to try to gain weight, but I got kind of skeletal. After awhile even the probiotics did not work, food just moved through system too fast. I am off pills now as MAC kept coming back, using aerobics and nebulizer. My infectious disease doc At Massachusettes General wants to put me on antibiotics every day , but I think they will kill me, so I have to have a conversation with her. It's a process, we have to try everything. Nothing seems to work 100% Try this, then try that, talk to your docs A LOT, find out alternatives. Stay on this site for tons of info. xo Christa
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I was just diagnosed with Mac lung disease, looking at the lab report I see also klebsiella oxytoca which doesn't sound to good either. My Dr. tells me I will start on 2 different antibiotics a day for 2 years. I am already exhausted and very uncomfortable with pain all over. I was wondering if anyone else also has this second diagnosis of Klebsiella oxytoca? They both seem to be bacterial infections but at the same time my ANA went through the roof. I would appreciate anything anyone can tell me about these conditions and what to do to minimize the effects of these antibiotics. I am 73 but still work and would love to be able to function especially since it is such a long treatment time. I appreciate anthing you can tell me.