I share your experience with these cysts as I have them also in my sacrum and thoracic spin. It’s my understanding that a neurosurgeon can remove them but I haven’t found one as of yet. I plan to see an orthopedic surgeon for my spinal and sacrum issues who has 30 years experience in what my problems are. Hoping he can direct me to someone that can help me. I’m 74 and have a lot of pain when I lay done. A neurosurgeon in the past wrote me off and said that I most likely had them all my life. Not so. It’s frustrating when they write you off. I will keep looking And hope that I find a surgeon who will correct this. If I I have any good news I will post a comment.

Hello @bluej and welcome to Mayo Clinic Connect. You will notice that I have moved your post into an existing discussion on this topic so you can review previous posts and connect with members like that of @mfratt who has already reached out in response to your post.

How are you currently managing your symptoms?

I have a 2.5cm tarlov cyst at S2. Finally saw a Neurosurgeon's NP in May. She did NOT recommend surgery. Her comments: cyst is in a high risk area, an enervated area, where there is a lot happening. Could result in permanent incontinence. She recommends learning if there is a "mass effect on the S3 complex", or if there is a nerve root issue. See Urologist and Neurologist before seeing a surgeon. . . then I moved across the country. Starting over in the search for docs who can help, but no longer even looking for a surgeon. Pain is there, on and off, most days. I treat it with thc, stretching, breathing and movement. That is, change activity and positions throughout the day. Sit, then walk, then stand, then lie down, then walk, then sit and keep it going all day. I am interested in learning from all of you!