I did a two week holter monitor and found out yesterday what I thought was continuous palpitations that I really had sinus tachycardia. The highest heart rate was 183. I was on my way back from Montgomery to see my granddaughter off in the Army and it was in the morning when I left Montgomery to go home around 9:48am that my heart rate was high. I could tell that something was going on but I thought it was palpitations. I went to the ER last week because my heart rate was going up while I was sitting and watching TV. I am now taking a beta blocker to keep my heart rate lower for now. My cardiologist and I discussed my diagnosis of SFN and she told me that she wants me to have a stress test and a Echo to rule out that I have no blockages in my heart. I really thought I had palpitations. I have had them my whole life but not like that. I had no idea. 2 years ago I was having pains like pin prick in my epigastric and upper stomach area. I ended up going to a gastroenterologist and saw an ARNP. I was scheduled for an endoscopy and was diagnosed with silent reflux and I also have chronic gastritis and chronic esophagitis. I had no idea you could have silent. I took pantoprazole since November of 2019 and recently quit taking it. My decision. I had another endoscopy in April and I still have it. I will have to go back and discuss medications. I know that I now have osteopenia and I do not want to keep taking the pantoprazole. I also quit taking my rosuvastatin. My decision. My nurse friend sister was taking statin for 20 years and woke up one day with pain on the scale of a 9 and pains in her eyes. She stopped her statin and got better. They then started her on another statin and her pain started back. I have taking b12 and D3. Three blood draws ago I had high B12, the next one was normal, the last one was high again. I have one more test that was taken for genetics to hear the results of. I don't know if its possible that those pin prick pains I had in the epigastric area could be related to neuropathy. I am thinking my SFN may be idiopathic. I had a rheumatology panel and it was negative for those autoimmune diseases. I know there are others. I have read quite a few of others stories on here.
Question: Have other people started out with pin pricks and went on to have other issues? I am still having pin pricks and my nerve numbers are very low. This started out the first week in March of this year. Everything has been rapidly happening. I do want to pursue Mayo Clinic in Jacksonville.
Question: Is there someone at Mayo that I could talk to about getting an appt for the things I want to pursue.
After reading many stories on Mayo Clinic connect I am getting the idea that if you have idiopathic that what ever happens next will be a surprise. There is no easy answer.
I have been studying this for weeks now about SFN and also medications. I am just not sure where to start when calling Mayo. I live near Pensacola and don't mind driving over there. My cardiologist said she thought it was a good idea for me to pursue Mayo. My symptoms were full blown on the first day. I woke up and had the pin pricks all over. I see that other people who have other symptoms had a vaccination and it started. Some people start with something and it increases. From what I am seeing it depends on the person as to what is happening that day.