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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)

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@maryz

It has been a while since my last post. I Live in Arizona and found two very helpful treatments that have helped my with my OLP. I am scheduled quarterly with Dr Seena Patel DMD MPH in Phoenix. I have very painful OLP on the inside of my mouth on both sides. I have a micro dose of Cortisone injected to the lesions on both sides of my mouth if needed; or one side I only need one. She also checks for any changes in my mouth and throat. I have my teeth cleaned quarterly. I avoid all dairy products as prescribed by my former Specialist in San Francisco. I am now able to manage the pain and eat better. I walk about 2 miles a day and work at the gym every other day to maintain strength. It is still difficult and slow to eat but I am very happy about the OLP pain reduction. I also have Vaginal LP. The medical treatment there is one of the steroid creams. It helps with the pain. My concern as always is the fear that any of these lesions could turn to cancer. However I do have confidence that I am getting great treatment. The best I have had in the 40 since I was diagnosed with LP. I wish you good luck and less pain! Mary.

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Replies to "It has been a while since my last post. I Live in Arizona and found two..."

Can I ask how you get your calcium without dairy products?

I am so glad to hear from you @maryz ! And the treatment sounds like it is perfect for you. How did you find a doctor who would treat you after all these years?

Thank you to whoever sent Mary's post of July 28th. I live in Canada and I have never heard of micro Cortisone shots. Thanks for all the hints to everyone. Not sure why, but I seem to lose messages that people have sent on this site. Sorry that I did not reply back. It just makes me feel better in a way to know other people are out there with similar problems. Thanks again, Judy.

How are u doing now Mary ? X