← Return to Communicating Challenges With Lewy Body and Dementia

Discussion
Comment receiving replies
@kellywilbanks

Truly appreciate any helpful suggestions or insight to how this disease is impacting my husband , as each day seems to look different. Thankyou for sharing with us caregivers as the uncertainty of the future is difficult . Just doing our best to take it one day at time !
Thankyou. Kelly

Jump to this post


Replies to "Truly appreciate any helpful suggestions or insight to how this disease is impacting my husband ,..."

Hi Kelly, that every day is different is a frustrating and sometimes confusing characteristic of dementia. Luckily we're here every day for the day's newest challenge. What communication issue has been a challenge for you and husband lately? What approaches do you use?

Hi Kelly
Doing our best to take it one day at a time is the best we all can do.
This is a journey. One that will have some good road, some bumps, some tight turns and a few crashes along the way.
It definitely is a roller coaster each day. It is definitely one from “in here”. My wife says I wonder which Larry I will get today. I wonder that as well.
It really takes a toll on me as I never want to hurt her.
The biggest thing you can do is being there. Letting him know he is not alone.
Help him to focus on things he can do and not on things he cant do anymore. I used to live in the what i used to be able to do jail for a while.
The Lord has shown me that I can still do many things - just different things than before.

Our caregivers are our best medicine - even if we cant or dont acknowledge it - it is still there.

How long ago was your husband diagnosed? How is he doing over all?
It helps me to understand so I can try to give better information to you.

Thank you for being on this journey with him.

Peace
Larry H