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jammer (@jammer)

Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Aug 7, 2021 | Replies (110)

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@hydrang3a

Nancy I don’t know what kind of Abscessis I have….but I know it’s very serious …requiring oral as well as 3 daily IV antibiotics and surgery. My cavity or hole and massive infection is concerning. I’m trying to be positive and I am grateful for a great care team but I am trembling with subconscious anxiety. Is there a way we may communicate privately? I’d like to know about your condition and management.

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Replies to "Nancy I don’t know what kind of Abscessis I have….but I know it’s very serious …requiring..."

Hi, I have been a bit absent from the site and comments for a few weeks as I have had other medical issues to take care of daily. I have been diagnosed with Abscessis Massiliense, which is slightly different than abscessis and treatment seems to be different; however, until I meet with Dr. Huitt at NJH I don't have much to share. I will be going there on the 17th and 18th and will connect with you after my visit; meanwhile, I am presently concentrating on some ongoing symptoms with my recent breast cancer surgery. I do hope that you are getting some relief and help with the major stress that you are feeling. I'll check in with you after NJH. Nancy

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