Hi happytobhear! First of all I praying for the very best results on your eye. You are in my heart and prayers.
I do relaxing audiobooks, and podcasts, and one I’ve purchased is Headspace, among others. I also listen to music and try to watch, more listen to series, movies and shows on TV. My son is wonderful about watching a lot with me. I’m so grateful for his compassion, company, kindness and help. There are a lot of times that it’s hard to watch TV due to my eye pain, migraines and the blurring in my right eye.
I’ve been to many specialists regarding my many health conditions. I’ve probably seen over 50 Drs., in the last 3 1/2, plus years. I’ve been to our teaching hospital, Anschutz, The Cleveland Clinic, The Steadman Clinic, and a Dr. in Pawtucket, RI. The Dr. at Pawtucket, came recommended, and was miss diagnosed, and he didn’t run one test, or do any bloodwork. At the Cleveland Clinic I saw 3 Drs., and each were 10-15 minutes long, and they did a EMG/NSC test, that I had 4 times before, and stated you have no nerve damage, which I already new. They dismissed everything, like it was in my head. To be fair a lot of other symptoms, showed up later. This was in the beginning. Yes, I could go back, but I don’t have a lot of faith in them. I’ve spoken with them since, and they don’t even know who I should see. They sent me home, while I was projectile vomiting in one Drs. office, temp. over 102, and had diarrhea uncontrollably in the Drs. office, and hadn’t kept food down for almost 5 days. I came home and was admitted immediately to the hospital here with C/DIFF, a UTI, oxygen at 82%, so dehydrated and my temp. was ove 104. This is why I don’t have faith in them.
If I make mistakes, I’m typing with an ice pack over my right eye. I’ve started having the eye pain, and blurriness. I’ve seen my eye Dr., and see sent me to a couple of specialists, but can’t find an answer. It hurts clear through inner side of the eye, below it and through the side of my nose. I’ve had migraines consistently through the years. Botox help, with the migraines, but scared to get it know due to my eye. My eye is just one of many health issues, that I’ve already posted.
I find crying in the shower is my cry time.
I do keep a journal of my symptoms, when they started, what seems to help, when they started, and who I’ve seen, very thorough.
I work with a very nice nurse, that’s with my insurance company, and she has really tried to help me.
When you say get a new primary, do you mean through the Mayo Clinic? I’m very willing to do that. If so, do you call yourself and try to make an appointment?
My primary has been doing peer to peers with Drs., at Mayo, with no luck. I absolutely would go through a Mayo primary Dr., if it’s possible.
I’m also a very healthy, clean eater. I will do anything to improve my heath.
The Drs. are stumped and so am I. Some of the top known Drs. in Denver and our teaching hospital recommends I go to Mayo. The nurse I have helping me, through my insurance company, is know recommending Mayo. I have a very dear friend, that goes to Mayo, and has for years. She has a very rare disease, and had been all over, to various hospitals, and the only place that could figure it out was The Mayo Clinic. She wouldn’t be alive today, if they hadn’t taken her, some 20 years ago. She’s in meds., and is doing well. She has good and bad days, but mostly good, and leads a fairly normal life, which she owes to the Drs. at Mayo at wouldn’t give up on her.
I’d like that chance. My eyes are deteriorating fast, plus this could be connected with everything else going on.
Without your health, you really are lost.
Please let me know if you meant, making an appointment with a primary at Mayo.
The very best if luck. You’re in my prayers. Lisa

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