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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@rivermaya34

Turning Point - help??

So, I started having minor numbness in my feet 9 years ago, but never really bothered me except when it’s cold. Yesterday, my legs started feeling “off”, and now tonight my feet are burning and feels like 10,000 needles stuck inside them. Also, my legs are now on fire and numb up to my knees. I knew this could happen someday, but didn’t realize it’d be so sudden and ramped up! Is this normal for it to be acute versus gradual? Will it stay feeling like this or simmer down? How does anyone ever sleep or function like this without losing their sanity?? 🙁 ... any suggestions or thoughts?

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Replies to "Turning Point - help?? So, I started having minor numbness in my feet 9 years ago,..."

@rivermaya34
I’ve had Neuropathy over 30 years and a number of the drugs used to treat it now weren’t yet available. Not long after Neurontin became available I started taking it. Even though I took the maximum dose of 3,600mg I got no relief from seizures or Neuropathy. I took various opioids including fentanyl which helped me the most. I don’t remember how quickly my Neuropathy progressed other than in the beginning it was very painful and about 10 years ago my feet became numb.
Take care,
Jake