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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@lisabrookside387

This is the worst disease ever...After 9 months of prednisone, and still on, also a monthly infusion for the rest of my life.....thank GOD for my doctors and supportive family anyone that needs help please let me know

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Replies to "This is the worst disease ever...After 9 months of prednisone, and still on, also a monthly..."
John, Volunteer Mentor | @johnbishop | Jul 26, 2021

Hello @lisabrookside387, Welcome to Connect. I suppose there are folks with other conditions that may have a difference of opinion but for me PMR was also the disease from you know where. I saw in your second post that you are now down to 7mg prednisone from a starting dosage of 60mg. You mentioned you are also on a monthly infusion for the rest of your life and other complications. I have had two occurrences of PMR both started at 20mg prednisone daily. The first time it took me 3-1/2 years to taper off, the second time took me about a year and half to taper off.

60mg seems like a really high dosage for PMR. Are you able to share a little more about your other complications or conditions you mentioned earlier?

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