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Hello:
I have been dealing with minor, slow progressing Neuropathy for the last year and a half. After a bazillion tests, the final diagnosis is idiopathic Small Fiber Neuropathy, triggered by some immune or autoimmune response..
After my initial occurrence, the numbness and tingling progressed quite slowly, and was very minor...until 2 weeks after my second Covid vaccine shot. That sent it into hyperdrive and things started progressing very fast, and lasted about a month. Things are not as fast now, but still progressing quickly.
My question/s: How do you exercise aerobically if you can't walk too much?
Prescriptions are a last resort. What has worked that's outside the box? Ie. supplements, acupuncture, or OTC meds. What are long-term effects of taking the usual neuropathy meds and treatments?
I'm not looking forward to the inevitable decline 🙁
Replies to "Hello: I have been dealing with minor, slow progressing Neuropathy for the last year and a..."
I was a runner for 50 plus years. After hip and knee surgeries (three left hips) I developed two super infections. I was put on Linzelod which you shouldn't be on for more than 28 days. That causes Neuropathy. But answering your question, I can't walk or exercise as much as I need to. I put a swimming pool in that had an eight foot deep end. I exercise a minimum of 60 minutes (up to and additional 60 minutes later) and it seems to help. I feel circulation and balance improves. I don't know if you have balance issues, but swimming exercise helps. My balance will most likely never improve. If anyone knows what to do to improve balance, I would love to hear from you.
Hello. Me, 73... old runner and active my entire life surfing, hiking etc. You just gotta keep moving. Walk on grass, tartan track and GET HOKA SHOES or an equivalent. Avoid "low balling" shoes as you will likely pay the price later. Best bets: stationary bike, walking, swimming, lifting etc. at your own pace. Avoid sitting for more than an hour. For me, no dish goes unwashed for more than 20 minutes and my wife is thrilled but it keeps me from getting lazy. You just have to ratchet down your routines as PN "rears its head" in so many different ways for everyone. I would avoid attaching any connection to COVID vaccination. I have found no medical support for this but if you have, please post reference.
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Hello @micasmar, Welcome to Connect. You will notice that we merged your discussion here with the Neuropathy & Exercise discussion so that you can connect with other members discussing neuropathy and exercise. I have idiopathic small fiber peripheral neuropathy and also can't walk much or very far due to my back. I purchased a Teeter FreeStep Cross Trainer (https://teeter.com/freestep/) to help with cardio and strengthening exercises. I also take supplements that have helped me some. Myself and other members have posted our neuropathy journey and what helps us in the following discussion -- Member Neuropathy Journey Stories: What's Yours?: Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
You may also find the following discussions helpful:
-- Supplement recommendations: What can help neuropathy?:https://connect.mayoclinic.org/discussion/supplement-recommendations-can-help/
-- Have you tried the new Protocol 525 product for neuropathy relief?: https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/
If you are looking for some exercise ideas, here is some information from the Foundation for Peripheral Neuropathy that you may find helpful: https://www.foundationforpn.org/living-well/lifestyle/exercise-and-physical-therapy/
What type of exercise do you normally like to do?