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PMR and exercise: What helps you?
Polymyalgia Rheumatica (PMR) | Last Active: Apr 26 1:16am | Replies (182)Comment receiving replies
My PMR started back in 2013. And it was really touch and go with exercise but I know for sure I was on prednisone several days before I attempted anything. There is a great website called HealthUnlocked and you might get some very good information it started in England. there are people from all over the world on this website. This is a disease more common in Europe. After three years I recover somewhat and PMR then became GCA So they went to prednisone again only doses that were higher. We are now 2021 and I am still on 7 mg of prednisone plus Actemra. More for adrenals. I would go slow with exercising and slow with prednisone reductions. I would get onto the HealthUnlocked website where they seem to know an awful lot more than we do here in the US.
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Hi Marilyn @marilynredder2367, Thanks for the website reference. I will include it below with others that I've found with a lot of great information on Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis.
-- Polymyalgia Rheumatica and Giant Cell Arteritis: https://www.aafp.org/afp/2006/1101/p1547.html
-- Support available for and perceived priorities of people with polymyalgia rheumatica and giant cell arteritis: results of the PMRGCAuk members' survey 2017: https://pubmed.ncbi.nlm.nih.gov/30066282/
-- Polymyalgia Rheumatica: https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Polymyalgia-Rheumatica
-- Polymyalgia Rheumatica: https://www.arthritis.org/diseases/polymyalgia-rheumatica
-- 3 Strategies for Coping with Polymyalgia Rheumatica (PMR): https://www.arthritis-health.com/blog/3-strategies-coping-polymyalgia-rheumatica-pmr
"... Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA." -- PMRGCAuk | HealthUnlocked: https://healthunlocked.com/pmrgcauk
You nailed it with slow and easy with the exercising and with tapering also! As my rheumatologist told me it basically boils down to listening closely to what your body is telling you.