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@becsbuddy

@tsc I, too, got osteoporosis from taking prednisone for an autoimmune disease. And I’ve been taking alendronate, but my T-scores got worse. I started out with high doses of steroids and have been on 10mg for about 8 months. Ive added in mycofenilate mofetile (CellCept) in hopes of replacing the steroids. Been on steroids for about 3 1/2 years.
You sound like you’ve been doing everything right! It sure is a bummer when you do what’s right but it all goes wrong anyway. It also sounds like you have a family history of osteoporosis.
Have the steroids at least helped your autoimmune disease?

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Replies to "@tsc I, too, got osteoporosis from taking prednisone for an autoimmune disease. And I’ve been taking..."

Hi Becky, Sorry to hear your T-scores got worse on the drug. That , too, is a bummer. I've been on prednisone since mid-May so maybe it's too early for it to have thinned my bones, But I had the autoimmune disorder (PMR +GCA, later) a year before diagnosis. For the last year, after my walk in the morning, all I could do was collapse on the couch because of the pain. So far, the prednisone as has been good to me, as good as it can be, I guess. I'll know more as I continue to taper. There is a family history of osteoporosis and also the PMR + GCA, my aunt had it too. And my mother-in-law, believe it or not. I hope the Cell Cept works for you.. It would be nice to hear if anyone was able to get better bone density through medications and exercise while staying on steroids.