Have you found a primary care physician yet?
I am fortunate to have a primary provider who is part of a large network of clinics and hospitals. When I needed a pulmonologist, I took her referral to someone, but after I saw him for a while I realized he was not expert in bronchiectasis, nor was he interested in collaboration with others. So I went to our physician-finder site and found a pulmonologist who listed bronchiectasis as a sub-specialty, and whose bio included collaborative medicine. Now I am a happy patient, even though she is quite a few miles away.
If you have such an option with your insurance, I suggest you look into being part of a multi-specialty network. Do you have choices with your insurance?
Sue