← Return to Camptocormia (bent spine syndrome or BSS): Looking for others

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@johnbishop

Hi @robtrich49, I would like to add my welcome to Connect along with @amandajro and other members. Reading your post made me think of my own situation. I have gradually started walking bent over since my fifties when my wife commented while we were on vacation that I walked like an old man. I just chalked it off to my becoming an old man. I no longer take long walks and I drive the grocery cart when we are shopping because it helps me keep more upright.

@rjmcb mentions using a brace in his post earlier in this discussion here - https://connect.mayoclinic.org/comment/182484/. I haven't done much investigation and really didn't know the condition was called Camptocormia or bent spine syndrome (BSS) until a friend on Connect mentioned she thinks I might have Camptocormia. So far it's been low on my list of things to discuss with my doctor but reading your post brought it back to the top so thank you for that. Last Winter I purchased some Nordic walking poles which work better than a walker for helping you walk more upright. I haven't used them much but need to start using them and working on my posture while sitting at the computer. I want to do a little more research and talk with my doctor about a back brace to see if it will help straighten me up so that I walk more normal.

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Replies to "Hi @robtrich49, I would like to add my welcome to Connect along with @amandajro and other..."

I can do everything I used to do but now I have to do it sitting down or be creative in anything I do. I have the " upwalker " now so I can hold myself better when I talk to people and I have a cane which all it does is steady me but I can only do about five feet..I have tried Botox and both kinds of physical therapy which did no good.Pretty much tried everything including a star wars type back brace but you could have touched me and i would have fallen over. If anyone would like to call me and talk about the tings I have tried then send me a private message and I will gladly send you my number.